A telltale sign of eye disease in kids

by Dr. Ryo on January 4, 2011

Poker players call it a “tell” – the thing some people do when, for instance, they are holding a really good hand. Maybe they adjust their eyeglasses, or run their fingers through their hair. They don’t know they do it, and the folks around the table certainly aren’t going to clue them in about it.

Photo from: http://www.knowtheglow.com

It turns out that some very serious eye diseases of childhood have a “tell,” too. And it’s one we should all be aware of. That’s the goal of the “Know About the Glow” campaign, an awareness initiative organized by The Vision Center at the Children’s Hospital of Los Angeles.

The “glow” is one that appears in one or both eyes of kids in flash photographs. This isn’t the “red eye” effect we’ve all seen; rather, it’s a white or gold glow or glint, and it’s often the first indication that a child has Coats’ disease, a blinding retinal condition; retinoblastoma, a potentially fatal malignancy; and over a dozen other eye diseases and cancers.

According to the campaign’s website, 1 in 80 children will have the glow. And it claims 80 percent of the cases of Coats’ disease and retinoblastoma are first spotted by a parent looking at a photograph. But the most important statistic on the site is this one: 80 percent of childhood blindness is preventable. And the key to preventing blindness is early detection and treatment. That’s why knowing about the glow is so important.

On the “Know About the Glow” site you can see family photographs of children in which the glow is very visible, and watch video accounts of two boys’ battles with eye disease, one with Coats’ and one with retinoblastoma.

And you can support the campaign by passing along a link to this post or to the campaign’s website. This is a “tell” that everyone should know about!

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  • drryo

    Hi Jaitrikai, I understand how scary it can be when our children, especially newborns, experience health issues. There are several common eye conditions that children are likely to experience, as detailed in this Parenthood article. In order to get a complete and accurate diagnosis, you will need to schedule a follow-up appointment with your pediatric ophthalmologist.

  • jaitrikai

    I'm grasping at straws here.. I have a wonderful six week old baby girl and I noticed at 4 weeks that every picture I took of her the left eye reflected and the right did not I also notice same right eye that the pupil is obviously smaller than the left pupil while dilating ... another sign I noticed the day she was born was the right eye kind of opens different than the left but I decided this was something that would change when she is older well because of the red eye effect thing I took her to a pediatric ophthalmologist... they said she has a normal condition of just the pupil size difference.. was relieved but still had doubt and that doubt built when last night my now 6 week olds right eye was tearing for no reason and this morning when she woke up same right eye was crusted shun and when i used a damp cloth to open it I noticed a white film over her eye .. noticeable enough to change her eye color... please any help on what this may be would be great!!!

  • In February, I saw a light inside anny's (my sister) eye, but I did not pay attention
    to it and I did not think it was anything unusual. But in April this
    year we decided to see an eye doctor. We received a frightening
    diagnosis -- Retinoblastoma. I felt as if the earth was slipping from
    under my feet - I was feeling terribly depressed!" @SARAH

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